I survived the day and managed to get my patients to their various locations in a timely fashion. It was a little soul destroying in the process though.
Ashlea is hating her daily blood tests. All her veins are shot from constantly being accessed so it usually takes a couple of goes to get the blood out - by which time she is screaming and sobbing hysterically, crying out 'MUMMY' - as if to say Why are you letting them do this to me Mummy - and all the while I am holding her down and letting them do it to her.
I know it is for her own good but I really hate that I have to do that to her. Every day.
Murray's blood test was less traumatic but it still somehow sucks a little bit out of you every time you have to spend hours in a doctors waiting room. I kept thinking we should be at home enjoying the last day of the school holidays as a family - not waiting for blood tests while on our way to rehab. At least the results showed his kidneys are continuing to head in the right direction (I think his creatinine was 370 ish).
Murray is now an inpatient at Mt Wilga rehab hospital. I don't think he is in love with the idea of having to stay there. It was really hard to leave him - especially as he still doesn't fully understand what happened to him or why he needs to be there. Again - it's for his own good - but I still feel like the bad cop!
This is turning into a whinge isn't it?
Unfortunately I'm not done yet.
When I got home Emma tripped over Ashlea and landed on her belly - where the kidney is!!! She seems fine and I am trying not to worry but part of me is tempted to drag her out of bed and rush to the emergency department 'just in case'. I feel guilty for not taking her in, but I just couldn't face it. (Kidney friends please feel free to tell me if I should take her).
As usual I couldn't get through days like today without all your support. Today alone I have had a friend come at the crack of dawn to sit with Murray and the girls while I took Ashlea to bloods, another friend drop in to visit Murray, a friend research respite options for me, Grandma come and watch the 3 girls all day, another friend drop in with a lamb roast for dinner, several friends ring to ask how things are going and another 2 friends bring around a load of groceries. THANK YOU ALL. It makes days like this survivable.